Thursday, 6 August 2015

Another day

Today was another bad day in a stream of bad days.

We arrayed the night again and it was a better night than before as he slept a lot more possibly because of the diazepam. The morning was bad though. He was spaced out all morning and the. When he finally came round he was agitated, distressed and disoriented. 
The nurse didn't want to give him more diazepam at first as she wanted to be sure it wasn't affecting him too much. He was struggling to swallow safely, it was horrible to watch. 

I felt so sad all morning and went outside to cry with warren. 

Later on the palliative care nurse came and said she felt he was very near end of life now. I asked if this could go for weeks and she said she thought not. She prescribed a syringe driver to distribute the mediation more evenly throughout the day. 

Later on there was a bit of a disagreement between me and and his brother as he didn't really feel the syringe driver should have been put in place without his permission. He seemed to think it was shortening his life. So horrible. We met again with the doctor and nurse and they seemed to talk him round. 

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